RARE Disease Research . . . Yes You Can!
There has never been a more opportune time for advocates to engage in research for their disease, community, and loved ones. This symposium will help attendees understand the drug and therapy development process, where they can play a role as research drivers, how to prepare for and leverage research opportunities, who the research partners can be, and learn when the time is appropriate to engage. A dynamic actionable program and agenda have been developed in collaboration with the Orphan Disease Center of the University of Pennsylvania.
During this 2-day event, you will have the opportunity to participate in panel discussions, hands-on breakout sessions, and office hours with experts that will help you:
- Leverage the power of data to drive basic research: What makes data valid and reliable?
- How new technologies can expand research opportunities: Find out how artificial intelligence is being used to transform an often complex, decades-long mission into a more efficient process, reducing the timeline and cost to bring therapies to patients.
- Understand regulatory considerations: Learn how to navigate the requirements through case studies and expert advice.
- Create a comprehensive research strategy: Understand the end-to-end process of drug discovery and development for rare disease. Participate in a workshop where you'll analyze your community’s potential and needs.
Patient stipend applications will be accepted until March 5, 2023. Learn about the stipends and if you qualify here.
Enjoy Early Bird pricing on regular registration when you register by March 4, 2023.
We look forward to hosting you!
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